Monthly Archives: February 2010

Odds and Ends

On a lighter, but franker note, a few ordered thoughts from the weekend.

First, I felt a decent amount like Frankenstein’s monster by Sunday night. Partially because I suddenly became hypersensitive to all noise. But partially because, in my weakened and nauseated state, I communicated mostly with grunts and moans and weird hand signals. Though on the plus side, my mom gave me this sweet Buddha bell to ring for soup or tea.

Second, I had this awful dream where I was in a funhouse and couldn’t get out. I knew I was dreaming, but somehow each time I made it out of the funhouse I was still in the dream. Very disturbing. Must be a metaphor for sickness or how awful funhouses are.

Third, a few folks came to the hospital with me this week. My parents (thanks, though that should go without saying) came. But my uncle Steve, my brother Josh, and my friend Pete also made it in. I was semi-coherent much of the time and making various vile noises (expectoration, regurgitation, yodeling, etc.) But no matter. It’s nice to have people sitting or milling about. So thanks, though that probably also could go without saying.

Fourth, I’ve been receiving lots of comments on the blog and too many e-mails to count (about the blog and otherwise). Trying to think what to say to those who write has been putting me through a bit of the Yuri Geller’s spoon routine. Fortunately, as happens frequently in these parts, an old Jewish joke has bailed me out. If you remember another version, pardon my adaptation. I think the spirit maintains…

On a winter’s afternoon Rabbi Spira and his freethinking friend Isaac are taking a walk on the Brooklyn Bridge. Suddenly, out of nowhere, jumps a man brandishing a pistol. “Jump across the water to the Manhattan Bridge or I will shoot you both,” he cries. It’s not yet dusk, but the bridge is deserted. Tired and dressed in heavy winter coats, the men see no hope in fleeing their assailant.
“There is no point in jumping,” Isaac says to the rabbi. “We’ll only be playing into his demented game. If he wants he should shoot us, let him. But I won’t sacrifice my dignity.”
“No,” says Spira. “We must jump. You must trust in me here.”
With bold determination, the rabbi grabs Isaac’s hand, closes his eyes, and says, “We are jumping!”
And then suddenly, as if carried on the wings of angels, the two men find themselves standing in the twilight on the Manhattan Bridge.
““Spira, we are here and alive!” Isaac shouts with glee. “Tell me rebbe, how did you do it?”
“I was holding on to my ancestral merit. I was holding on to the coattails of my father and my grandfather and my great-grandfather, of blessed memory,” said the rabbi, and his eyes searched the skies above. “Tell me my friend, how did you jump the waters?”
“I was holding on to you,” replies Isaac.
That’s my thought for now.

Weekend Update

Exceptionally enervating few days. Thursday folded itself into Friday, which folded itself into Saturday and Sunday. Sort of a little origami weekend.

A friend’s father wrote a thought-provoking e-mail the other day. It included the following challenge:

This technology provides an opportunity  for public introspection (maybe that’s something you don’t want to do… maybe, though, it is) but I’m guessing your friends and family and not to mention you would benefit  from your less glib and more introspective thoughts.

Before getting into the significance of the thought, don’t read too brusque a tone into that passage. It’s taken slightly out of context—from a warmly written message.

In any case, the e-mail got me thinking about this blog and about the purpose—or value—of writing on a serious topic like sickness (or loss, love, etc.) And I’m not entirely sure I have a good answer, for myself or for my friend’s father.

At the hospital the other day, between my episodes of retching into my yellow emesis bucket, my brother Josh kept repeating the same bon mot: “When life gives you cancer, make cancer juice.” I guess it should technically be “make cancer-ade,” but that’s sort of beside the point.

It goes without saying that it’s easier to joke about a painful situation than to weep about it. It’s less emotionally draining and it probably requires less thought. Which brings us to the question of the glibness of my blog (the strength of its glibido, if you will). According to my trusty digital version of Merriam-Webster, the third definition of glib is ”lacking depth and substance.” Is that too harsh? Maybe a little. But as Mel Brooks says, “Humor is just another defense against the universe.” To jest about something that cuts to the bone is, in a sense, to try and slough it off with minimized discomfort. I haven’t bared every ounce of my being here in my writing, nor have I literarily (or philosophically) wrestled with the largest elephants in the room (though I have boxed with some decent-sized hippos).

As a writer, that might mean I’m dissembling. But as me, I think it’s a good place to start. Or rather, it’s a place to start. If I had a little scribe in my head, keenly recording every impulse or sensation I’m experiencing, he’d probably eschew humor and just spew viscera and bile onto these august (Web) pages. But seeing as I’m the filter through whom I’m filtering these words, I believe I’m satisfied for now with just writing something down.

The best analogy I can muster right now is surgical. It’s a little trite, but it’ll do the trick. One day, you’re walking in a riverbed and you slip, dislocating your shoulder. It hurts like hell, so the medics give you morphine. That doesn’t get your shoulder back in its socket, but it soothes your mind and body enough so they can cart you off to the hospital. Then, once you’re three sheets to the wind, they pop the shoulder back in. A few months later, you have an MRI and it turns out you’ve got a torn labrum. So you schedule your arthroscopy, truck yourself into ambulatory surgery, and—presto-chango—the sick are healed. Do a little physical therapy and the only reminders you have of the whole thing are a good story and a faint clicking noise when you stretch.

You should be able to put those Legos together according to the picture on the box. But if you’re too much like me and always ended up wondering how come this Aquanauts set didn’t magically generate an underwater kingdom upon completion, I’ll do a little sketching. When you (and by you, I really mean me) take a traumatic hit, the best first thing to do is get the immediate discomfort down from tooth-gnashing to nose-scrunching. In the case of my shoulder, you would use morphine—in the case of this analogy, you (and again, I really mean me here) would use this blog. You can do the rest yourself (if it’s any consolation, the Aquanauts in that set did come with these sleek silver knives for the Lego dudes and a cool little working crane for lifting the buried treasure).

Perhaps later I will offer myself (and my readers) a different take on how I’m feeling—less jokey, more gritty. That’s like the shoulder-relocation, MRI, surgery, etc. part. For now, I’ll lie dopily on my back, under the inebriated warmth of too much morphine.

TGIF

I was planning on writing a long post earlier Thursday but I was detained by various events at the office. So instead of pontificating extensively on the nature of things, I’ll share a few thoughts from the day.

After a small, crunchy bowl of Cheerios, I trekked through the slush on my block to a cab. Managed to make it within spitting distance of the hospital before my stomach decided to clock out. The cabbie, a talkative fellow from outside Sao Paolo, offered to walk me inside. But after a few huffs and puffs I was able to return my system to equilibrium, so I thanked him and entered on my own.

"If you're gonna spew, spew into this."

Last time I was sick at the hospital the nurse handed me this diminutive emesis tray. One of those kidney-shaped plastic containers they give you for rinsing at the dentist’s office. This is not the kind of receptacle you want protecting your lap from a monsoon of vile humours. It reminded me of that scene in Wayne’s World, where Garth hands a pallid, catatonic Sean Sullivan a three-ounce Dixie cup to capture his hastening regurgitation.

Needless to say, today I asked for the regular bucket.

I slept through the late morning and into the afternoon at the hospital, so the day was mostly a blur. In the car home, I kept expectorating into my bucket. Call me crazy, but I spit in the shape of a rabbit and a horseshoe crab. These are both propitious signs. In the Chinese Lunar Calendar, I was born in the Year of the Rabbit, which is famous for being the year that I would be born in the Chinese Lunar Calendar. The horseshoe crab gets a bad rap on account of being hideous to behold, but it does possess the ability to regrow its own limbs. Reminds me a little of this guy.

So that was the day that was. I ate a piece of brisket and a small bowl of oatmeal, garnished with brown sugar. Now I’m curled up on the couch, waiting for sleep’s stealthy riptide to carry me off.

Poison Pill


Let Al Gore explain my Michael Stipe-esque pate.

I’ve learned many lessons these past few weeks and month. For example, I’m starting to suspect that the drugs the doctors are giving me have some unpleasant side-effects. It just seems unlikely that global warming would make my hair fall out.

Update: It now occurs to me that my previous post was titled “The Day After Tomorrow.” Must have been having a premonition. Anyway, check back later for more conspiracy theories.

The Day After Tomorrow

That is my last day of treatment for the week. So today is a major hump day here at the old ward. I wonder if there are hump days in the camel world. If so, Dromedaries would use the traditional Wednesday hump day. But the Bactrian camel would have to observe hump days on both Tuesdays and Thursdays. Just something interesting to think on.

Despite the dreary weather today the ward is operating normally. So I’m back to my usual chair. It’s not too bad, though the man behind me has been waxing poetically about the state of his bodily fluids. More to follow after my lunch arrives.

The Royal Treatment

The King's Chamber

People are always saying to me, “Raf, my greatest wish in life is to see the inside of a chemotherapy suite.” I’m pretty sure that’s what the townspeople were saying at Chernobyl, and we all know how well that worked out. But seriously, there’s nothing that makes me happier than granting people wishes.

So if you’ve been aching to get a peek inside Memorial Sloan-Kettering’s Sydney Kimmel Center for Prostate and Urologic Cancers (There’s a long line—I hear people are almost dying to get in), today is your lucky day. As I mentioned earlier, a minor overbooking at the hospital this morning meant I was given a private room in the ward. This little adventure into the lap of luxury might have been lost from history were it not for my uncle Steve’s timely decision to bring a digital camera to the hospital. So here are three photographs of me in my new habitat.

In the first image, I’m doing my best Vin Diesel impression, if Vin Diesel were a pasty Jewish guy with half-rim glasses. On my right is my intravenous drip, also known as an IV. It’s kind of in the Ivy League of drips.

The Royal Litter

In this second image, I’m hooked up to the drip and settled comfortably in bed. The somber look on my face can be attributed to a harsh reality I faced at the hospital today. After reveling in the copious amounts of urine I produced during Monday’s visit, I today plummeted—like Icarus after a long night spent drinking antifreeze—rapidly to the earth. My nurse informed me that even a man with my impressive bladder (presumably me) must be careful not to fill past capacity. So from now on I’ll have to use the bathroom more frequently, robbing me of the chance to best my personal record of 900 milliliters micturated. But that’s the kind of sacrifice a man has to make to get by in this crazy, mixed-up world.

The third and final picture is a close-up of my hand and the IV that delivers my chemotherapy drugs through a plastic catheter. Of course, you cannot see the catheter, on account of it being inside my vein. But just use your imagination, or look at this picture of a plastic butterfly IV catheter, in rich magenta.

The Monarch's Butterfly

Well, that’s a comprehensive description of the wonderful world of chemotherapy suites. Tune in next time for more reports on my urinary output.

To Sleep, Perchance

Do I look like I'm made of this guy?

Traditionally, I prioritize sleep over all other things. Aside from the occasional exam, job interview (or job), or plane to catch I’m not likely to get out of bed in the morning if I haven’t gotten at least six or seven good hours of shuteye. Since I wasn’t working a nine to five this past summer, it’s been a good seventeen months since I last had to consistently wake up before 11 a.m. Some people may call me slothful for maintaining such a slavish devotion to my slumbering. But I would disagree. I am not composed of any sloths, let alone full of the creatures.

I don’t see anyone criticizing the babies of the world for passing their days snoozing in cribs, only taking the occasional break to violently slobber all over the place or to make in their diapers. So I’d suggest withholding judgment.

In any case, this spring I’m taking the semester off from school, so I have the chance to sleep pretty much whenever I want, for as long as I want. Unfortunately, on the five days I take chemotherapy at the hospital, I have to wake up at the ungodly hour of 9:30 a.m. The first week of treatment, I managed to get to sleep before 1:30 a.m., allowing me a comfortable (if not thoroughly luxurious nine to ten hours). But the accumulating fatigue of my first 21 days knocked my entire sleep schedule out of whack. If—I quickly discovered—you’re sleeping and napping for a combined sixteen hours a day, it’s nearly impossible sleep at a reasonable hour.

Last night, I crawled into bed around two. I was out within the half hour, but I awoke at five, too wired to sleep. When I wake up earlier than planned, I usually have a window of 15 or so minutes to return to sleep. Beyond 15 minutes I reach the point of no repose, after which there’s pretty much no hope of sleep anytime soon.

Update: I began writing this post about two hours after I woke up. I then passed out for two more hours. At the hospital, the chairs in the treatment wing were all booked up. So they upgraded me to first class, where I got a bed and a private room. So it all worked out in the end.

Urine Luck

Here I am at the hospital, on the drip. In order to get out each day, you have to urinate at least 700 milliliters. They give you a plastic jug with a crooked neck and you have to fill it with urine and record your output. I hate to be immodest, but I’m a world-class pisser. I can hit 900 ML in one shot, which is sort of the micturitional equivalent of Wilt Chamberlain’s 100-point game. Unfortunately, the hospital doesn’t compensate or reward you for being a model patient. While we’re waiting for this whole health-care extravaganza to be resolved, perhaps we can add in some provisions to change that. Imagine a world in which I could walk out of the hospital with a golden toilet bowl honoring my achievements in the emictory arts. That could go along with a 50 percent discount on future visits, or at least an upgrade to a private suite.

I’m normally comfortable in my room, but today this wing has rather been loud. Earlier in the afternoon a man across the hall was shouting into his cellphone, “You’re yelling, you’re yelling, stop yelling!” Normally, I would have taken the opportunity to interject, “You’re yelling.” But seeing as he was here for his own treatment, I decided I would leave him alone. That’s the kind of compassion I’m learning from my treatment.

In seriousness, though, it’s fascinating to observe the other patients in the ward. Some people spend their entire visit hammering away on their laptops or Blackberrys, mostly oblivious to their surroundings. Others chat with family or nap. I’ve made two friends so far. A soft-spoken, very pleasant 28-year-old from Ridgewood (also a devotee of The Wire and The Office) and a kid my age from upstate. The kid had his surgery a few weeks ago and he’s doing chemo now. I’ll have that same surgery in late May. Apparently you’re not allowed to eat anything with fat for a month. What kind of medical advice is this? I’m pretty sure these doctors are trying to surreptitiously kill me. I could disappear if I don’t eat fat for a month. Like a sugar cube in a cup of tea. One second I’ll be there, the next second I’ll be gone.

So I will be on the anti-Atkins diet for a number of weeks. Just bread and rice and pasta and potatoes. Except eating potatoes without butter, milk, or oil is about as pleasant as eating pureed packing peanuts. Just thinking about it parches the throat. But you’ve got to do whatever the doctor orders. If he tells you to rest 20 hours a day, you rest 20 hours a day. If he tells you to jump, you say “how high?” If he tells you the anesthesia will make you woozy, you say, “how high?” If he asks you the name of the Jesse Dylan film starring Method Man and Obba Babatundé you say “How High.” No choice in that.

The various restrictions can start to grate—but there is also something comforting about having everything spelled out for you. It removes all the guilt from the equation. If you listen to the doctor, you’re good to go. If you can fairly call a month of eating hardtack “good to go.” At least I’ll always have peeing.

Hair of the Dog

Tomorrow I return to the hospital for my second round of treatment. I haven’t yet gotten to the point where my scalp can be used as a reflecting pool, but my hair is about as short as hair can be and still be hair. If that makes any sense.

The treatment process is strangely predictable. Everything is scheduled. Four cycles of twenty-one days. Each cycle is five days of chemotherapy, sixteen days off. Nausea is strongest the end of the first week, immune system weakest the end of the second. You lose your hair around the third week of the first cycle. You lose your mind the second week of the second cycle. Haha. Kidding! That actually happens in the third cycle.

Just a little levity for the kids out there. There is, though, an odd confluence of order and disorder in the process. You know what will happen when and you know the percentages for all possible outcomes. One in seven patients, for example, will experience tinnitus—ringing in the ears. That seems like a comforting statistic, until you realize that you have no control over whether you’re in the unlucky 14 percent (or the lucky 14 percent, if you’re trying to emulate Quasimodo).

The numbers are all in front of you, but aside from repeating them ad infinitum to nervous friends and family (If I had an alabaster ostrich for every time I’ve said “95 percent cure rate,” “one of the top three surgeons in the world,” or “Sixpence None the Richer,” I’d have a huge collection of alabaster ostriches) you can’t really do anything with them.

My nurse told me that some patients complain of a lingering metallic taste in their mouths. She also told me doctors recommend these patients quit sucking the mercury out of thermometers. And many patients experience tingling in their phalanges. Can you call fingers and toes “phalanges”? What do you call the digits of Lebanese rightists? Phalangist phalanges!

In the Georgicon, Vergil writes, “Felix, qui potuit rerum cognoscere causas”—lucky is he who is able to know the causes. I know the relevant statistics for every facet of my treatment. I know the causes. That is probably preferable to the alternative. But the knowledge of causes can’t lift the veil of uncertainty that necessarily accompanies this whole endeavor.

Would I be singing a different tune if the doctors were prescribing a generous bloodletting instead of a cocktail of Cisplatin and Etoposide? Yes. I would be singing the mourner’s Kaddish, for myself. But I still think the numbers only get you so far. The rest is left to faith, patience, or—in my case—sheer obstinacy.

Welcome to the Jungle

Alright folks, I’ve decided to enter the blogging game for the time being. I figure I will post periodically to share my thoughts on the state of the world or whatever else comes to mind.

To start out, I must point to this article, which claims the average blog in 2007 had only seven readers. That’s a pretty old statistic, so for our purposes let’s assume the average blog today has fewer than seven readers. Since most blogs are awful, it’s probably for the best no one is reading.

Why am I starting a blog then? Because I subscribe to the philosophy of the old Jewish joke told most famously in Annie Hall:

Two elderly women are at a Catskill mountain resort, and one of ‘em says, “Boy, the food at this place is really terrible.” The other one says, “Yeah, I know; and such small portions.

So welcome to the Audacity of Pope. I hope you enjoy.

Update: My first reader (my friend Pete) points that I am only six readers away from eclipsing the average readership for a blog. So this blog will soon be officially above average! I’d suggest getting in on the ground floor.